Published 23:30 IST, June 12th 2020

International albinism awareness day 2020 - Meaning, Significance, Celebration, and more

International albinism awareness day 2020 - Meaning, Significance, Celebration, Health conditions, and more. What is Albinism and its effects, learn about it.

Reported by: Chitra Jain
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me of year 2020 of International Albinism Awareness Day is "Made To Shine". This me for 2020’s International Albinism Awareness Day was chosen to celebrate successes and accomplishments of individuals with albinism globally. This day is also an appeal for masses to stand in unity and harmony with people suffering from albinism in ir challenges.

Recently, in some countries, se people have been named “Corona” or “COVID-19” in an attempt to blame m for pandemic. According to UN, killings, attacks, harassment, degrading, and discrimination continue against people with albinism. Yet on this day, we are recapped that in spite of se dreadful practices, individuals with albinism continue to confront such hurdles and face up to discriminations with spirit. Today is day when we can stand toger with individuals suffering from albinism across world in ir battle to live a life that is free of humiliation, discrimination, fear, and violence. And hence me of this year signifies a world where y are made to shine. 

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Celebration-

Celebrate this day and join  online celebration on 13 June. In solidarity with person and individuals suffering from albinism worldwide, use hashtags #MadeToShine #standup4humanrights. Read more about this rare condition in some humans. 

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What is Albinism?

Albinism is a rare, n-contagious, genetically inherited dissimilarity present at birth. Albinism is a condition found in both sexes irrespective of background, society, and culture and in all countries across world. Albinism results in a lack of pigmentation (melanin) in hair, skin, and eyes, causing vulnerability to sun and bright light. As an effect, almost all people with albinism are visually impaired and are prone to developing skin cancer. re is treatment or cure for lack of melanin that is dominant in albinism.

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Health challenges of people living with albinism as curated from various medical websites-

  • lack of melanin means people with albinism are highly vulnerable to developing skin cancer.
  • Reportedly, a majority of individuals suffering from albinism suffer from skin cancer between 30 and 40 years of .
  • Skin cancer is highly preventable, which includes access to regular health checks, sunscreen, sunglasses, and sun-protective clothing.
  • Due to a lack of melanin in skin and eyes, persons with albinism often have a permanent visual impairment.

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United Nations Independent Expert on enjoyment of human rights by persons with albinism

United Nations Human Rights Council adopted a resolution in 2013 (A/HRC/RES/23/13) calling for prevention of attacks and discrimination against people suffering from albinism. Additionally, in response to demand from civil society organizations advocating to consider persons with albinism as a specific group with specific needs that necessitate distinctive attention, Council created mandate of  Independent Expert on enjoyment of human rights by persons with albinism. In June 2015, Human Rights Council appointed Ms. Ikponwosa Ero as first Independent Expert on human rights for persons with albinism. And hence, June 13 is celebrated as International Albinism Awareness Day.

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23:30 IST, June 12th 2020